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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific cond...

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Corporate Author: SpringerLink (Online service)
Other Authors: Rubin, I. Leslie. (Editor, http://id.loc.gov/vocabulary/relators/edt), Merrick, Joav. (Editor, http://id.loc.gov/vocabulary/relators/edt), Greydanus, Donald E. (Editor, http://id.loc.gov/vocabulary/relators/edt), Patel, Dilip R. (Editor, http://id.loc.gov/vocabulary/relators/edt)
Language:English
Published: Cham : Springer International Publishing : Imprint: Springer, 2016.
Edition:1st ed. 2016.
Subjects:
Health promotion.
Quality of life.
Clinical psychology.
Families.
Families—Social aspects.
Health Promotion and Disease Prevention.
Quality of Life Research.
Clinical Psychology.
Family.
Online Access:https://doi.org/10.1007/978-3-319-18096-0
Table of Contents:
  • Foreword; David Satcher
  • Tribute to Allan Crocker; I. Leslie Rubin
  • Introduction to the volume; I. Leslie Rubin
  • Part I. Systems of Delivery Health Care
  • Chapter 1. Introduction to Intellectual and Developmental Disabilities; Dilip R. Patel, Donald Greydanus, Joav Merrick and I. Leslie Rubin
  • Chapter 2. Health is More Than Medicine; Donald J. Lollar and Randall A. Phelps
  • Chapter 3. Health of Health Care for People with Intellectual and Developmental Disability; Wendy M. Nehring and Brandi Lindsey
  • Chapter 4. Family Centered Care
  • 4.1. Family Centered Care in a Health Care Setting; Catherine de Haas and Ruth Ryan
  • 4.2. Siblings of Children and Adults with Intellectual and Developmental Disability; Monica McCaffrey
  • 4.3. Grandparents as Caregivers for Grandchildren with Intellectual and Developmental Disabilities; LaShawnDa Pittman, Janice Nodvin and Maeve Howett
  • 4.4. Aging Parents; Nancy S. Jokinen
  • 4.5. Rights of Individuals with Disability to Parenthood; Karen McKenzie, Laura Shewan and Suzanne Wilson
  • 4.6. Foster Care; Julie Dini
  • 4.7. Transitioning Youth to Adult Health Care: A Person-Centered and Culturally Competent Approach; Stacey Ramirez, Staeshe Collins and Brenda Liz Muñoz
  • Chapter 5. Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities across the Lifespan; Georgina Peacock and Cheryl Rhodes
  • Chapter 6. International Classification of Function; Margaret Kyrkou
  • Chapter 7. Systems of Health Care Delivery
  • 7.1. Clinical Settings for Health Care Delivery; Stephen B. Sulkes
  • 7.2. Reaching the Unserved and Underserved: Medical Care in Rural and Urban Settings; Daniel Crimmins and Akilah Heggs
  • 7.3. International Perspectives on the Delivery of Health Care; David O´Hara
  • 7.4. Health Care Financing; David Ervin
  • 7.5. Systems of Health Care Delivery: Community Setting; Rosemary M. Caron
  • 7.6. Models for Care for Children with Medical Complexity; Melinda Morin, Justin Alvey, Nancy Murphy and Laurie Glader
  • 7.7. School Settings; Jeffrey Okamoto
  • 7.8. Health Care Transition; David Wood, Linda R. Edwards and Brian Hennen
  • 7.9. Community Healthcare; David A. Ervin and Brian Hennen
  • 7.10. Nursing Home Settings; Nursing Home Settings; Sandra Friedman
  • 7.11. Current and Emerging Trends for Residential Supports for Persons with Intellectual and Developmental Disabilities and the Impact of Managed Care Initiatives; James Conroy, Steven J. Dale and Robert McCaffrey
  • 7.12. Large Residential Facilities; Norberto Alvarez
  • 7.13. Community Nursing; Joan Earle Hahn and Laura E. Fox. 7.14. Medical Home; Liz Grier
  • Chapter 8. Principles of Care and Ethics; Peter J. Smith
  • Chapter 9. Practicalities of Care. 9.1. Practicalities of Care for Adults with Ïntellectual and Developmental Disabilities; Peter Lindsay and Matt Hoghton.' 9.2. Electronic Medical Records; Stephen B. Sulkes
  • Chapter 10. Intellectual Disability and the Environment
  • 10.1. The Environment; J. Carolyn Graff and Jeffrey A. Foran
  • 10.2. Fetal Environment and Risks for Intellectual and Developmental Disabilities; I. Leslie Rubin
  • Chapter 11. Built Environments for Improving Human Development and Promoting Health and Quality of Life; Chris Kochtitzsky and Michele Crachiola
  • Chapter 12. Public Health Perspectives on Intellectual and Developmental Disabilities; Gloria L. Krahn and Michael H. Fox
  • Chapter 13. International Perspectives
  • 13.11. Systems of Delivery of Health Care for Persons with Developmental Disabilities: The Case of Belgium; Koen Hermans and Anja Declerq
  • 13.2. Service for People with Intellectual Disability in the United Kingdom; Hardeep Uppal and Vee P. Prasher
  • 13.3. People with Developmental Disabilities in the United States of America; Gloria L. Krahn and Lynda B. Bersani
  • Chapter 13.4. Former Soviet Union; Naira Avetisyan
  • 13.5. Health and Social Services for People with Intellectual and Developmental Disabilities in Taiwan; Kuo yu Wang
  • 13.6. Intellectual Disability in India: Recent Trends in Care and Services; Satish C. Girimaji and John VS Kommu
  • 13.7. Hong Kong, PRC; Ben MF Law and Daniel TL Shek
  • 13.8. Israel; Joav Merrick and Mohammed Morad
  • 13.9. Canada; Ian Casson, Theresa Broda, Jessica Jones, Alvin Loh, Bruce McCreary, Ullanda Niel and C. Ruth Wilson
  • 13.10. Organization of Services and Life-Long Health Care: Japan; Shigeru Suemitsu and Susumu Uehara
  • 13.11. Special-Needs Education, Special Care, and Education for Physicians in Finland; Markus Kaski
  • 13.12. South America. A Service Example from Lima, Peru; Liliana Mayo and Judith M. LeBlanc
  • 13.13. Status of Legislation and Services in Turkey across the Lifespan; Kerim M. Munir
  • 13.14. Service Organization and Support for People with Intellectual and Developmental Disabilities in the Netherlands; Frans VPM Ewals and Sylvia A Huisman
  • 13.15. International Perspectives: Chile; Rosario Moore, Patricia M Valenzuela, Maria A Paul and Macarena Lizama
  • 13.16. Services for Persons with Intellectual and DEvelopmental Disabilities in Italy; Fabrizio Fea
  • 13.17. Denmark. A Historic Journey; Joav Merrick, Peter Uldall and Jakob Volther
  • 13.18. Service and Care in Australia; Robert W. Davis
  • 13.19. Africa; I Leslie Rubin
  • Part II. Clinical Care
  • Chapter 14. Developmental and Functional Evaluation and Assessment; Dilip R. Patel and Cora M. Taylor
  • Chapter 15. Communication with Patients, Parents and Other Caregivers; Sheridan Forster
  • Chapter 16. Inborn Errors of Metabolism
  • 16.1. Newborn Screening; Geoffrey R. DeTolve
  • 16.2. The Mucopolysaccharoidoses; Robert Conway
  • 16.3. The Sphingolipidoses; Robert Conway
  • 16.4. Mitochondrial Disorders; Frances D. Kendall
  • Chapter 17. Genetics and Genetic Syndromes.' 17.1. What is New in Genetics and Genomics?; Helga V. Toriello
  • 17.2. Autism and Genetics; Helga V. Toriello
  • 17.3. 22q11.2 Deletion Syndrome: A Paradigmatic Copy-Number-Variant (CNV) Disorder; Joseph F. Cubells
  • 17.4. Genetic Counseling; Sarah L. Klemm and Jennifer Fulbright
  • Chapter 18. Syndromes
  • 18.1. Down Syndrome; Brian G. Skotko and Ariel Tenenbaum
  • 18.2. Fragile X. Syndrome; Emma Hare, Reymundo Lozano, Lindsey Partington and Randi J. Hagerman
  • 18.3. Rett Syndrome: Seeing the Way Forward; Alan K. Percy
  • 18.4. Prader Willi Syndrome; Randell Alexander
  • 18.5. Williams Syndrome; Elaine Pereira, Robert Marion and Barbara R. Pober
  • 18.6. Angelman Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson
  • 18.7. Smith-Magenis Syndrome; Donald E. Greydanus and Joav Merrick
  • 18.8. Noonan Syndrome; Jacqueline A. Noonan
  • 18.9. Phakomatoses; Bruce Korf
  • 18.10. Spina Bifida; Robert A. Jacobs, Alexis Deavonport, Kathryn Smith and Alex Van Speybroeck
  • 18.11. Fetal Alcohol Syndrome; Ariel Tenenbaum, Isaiah Wexler and Joav Merrick
  • 18.12. Other Syndromes
  • 18.12.1. Lowe Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson
  • 18.12.2. Nager Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson
  • 18.12.3. Sturge-Weber Syndrome; Donald E. Greydanus, Helen D. Pratt and Marlene Pryson
  • 18.12.4. Klinefelter Syndrome; Vandana Raman
  • 18.12.5. Cornelia de Lange Syndrome; Elizabeth Poplawski
  • Chapter 19. Prematurity and Ist Consequences; I. Leslie Rubin
  • Chapter 20. Cerebral Palsy; Sarah Winter
  • Chapter 21. Neurological Disorder
  • 21.1. Congenital Anomalies of the Brain; Ayelet Halevy, Osnot Konen and Aviva Mimouni-Bloch
  • 21.2. Epilepsy; Norberto Alvarez
  • 21.3. Sleep disorders; Norberto Alvarez
  • 21.4. Movement Disorders; Paula D. Ravin
  • 21.5. Dementia and Alzheimer’s Disease; Norberto Alvarez
  • 21.6. Peripheral Nerve Disorders; Norberto Alvarez
  • Chapter 22. Physiatry and Function
  • 22.1. Pediatric Aspects of Physiatry and Function; Joshua Vova and Maurice G. Sholas
  • 22.2. Psychiatry and Function: Common Issues in Adults with Intellectual and Developmental Disabilities; Dale C. Strasser, Laura Jones and Mitchel Leavitt
  • Chapter 23. Developmental Therapies and Functional Assistance
  • 23.1. Allied Health Professionals; Meir Lotan
  • 23.2. Occupational Therapy; Sharon A. Cermak and Ann E. Borreson
  • 23.3. Physical Therapy; Priscilla S. Osborne and Meir Lotan
  • 23.4. Speech Language Pathology: Supports to Communication; John M. Costello and Howard C. Shane
  • Chapter 24. Health Promotion; James H. Rimmer and Kelly Hsieh
  • Chapter 25. Orthopaedic Considerations; Karen M. Bovid and Dilip R. Patel
  • Chapter 26. Dermatology; Brian P. Pollack, Leslie P. Lawley, Jenna Streicher, Jason Hadley and Jack L. Arbiser
  • Chapter 27. Eye and Vision Care; Laura Gwatkin
  • Chapter 28. Dentistry; Ilan Feldberg and Joav Merrick
  • Chapter 29. Otolaryngology
  • 29.1 Hearing Impairment; Peter Chung, Shibani Kanungo and Dilip R. Patel
  • 29.2 Otolaryngology; Michael McWay and Colleen Dodich
  • Chapter 30. Gastrointestinal Issues; Orhan Atay
  • Chapter 31. Nutrition; Dawna Torres Mughal and Patricia Novak
  • Chapter 32. Feeding Aspects; Laura Minando and Elana M Bern
  • Chapter 33. Endocrine Issues; Rachel-Marie A. Cazeau and Manmohan K. Kamboj
  • Chapter 34. Urological Concerns; Julian Wan
  • Chapter 35. Cardiology
  • 35.1 Congenital Heart Disease and Down Syndrome; Kenneth J. Dooley
  • 35.2 Congenital Heart Disease; Shiva Sharma
  • Chapter 36. Pulmonology, Sleep Disordered Breathing and Sleep Apnea; Charles A. McCaslin and John Norman Schuen
  • Chapter 37. Women’s Health; Stephanie J. Stockburger and Hatim A. Omar
  • Chapter 38. Men’s Health; Joav Merrick and Mohammed Morad
  • Chapter 39. Sexuality; Sorah Stein and Mitch Tepper
  • Chapter 40. Cancer and Oncology; Walid Kaddan and Joav Merrick
  • Chapter 41. Severe and Profound Intellectual Disability
  • 41.1 Care; Margaret Kyrkou
  • 41.2 Psychological Well-Being of Children and Adults with Severe and Profound Intellectual and Developmental Disabilities; Fleur-Michelle M Coiffait and Alexandra T Leedham
  • Chap.

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